So tonight we went to the grizzlies game, with the leukemia and lymphoma society. Awesome story, when we got there, and were finding our seats, a really nice lady, who works for the administration office, offered us upgraded front row, right behind the glass to the left of goal seats. So so sweet of her. The kids got bear claws, and hockey pucks. And really (maybe too much) enjoyed the face smashing glass action.
Fun night.
Wow I am really bad at updating, korbyn is 3 weeks away from final maintenance, which will be only every 4 weeks iv chemo, and prescription chemo at home. This little guy shows me daily what bravery is. I have seen him look cancer in the eye, and stand his ground.
Right now the only real concern is the " manorexia" he is getting so skinny. I don't think the Dr appreciates my sense of humor, when she said he has chemo induced anorexia, I joked that with the barfing, I think its more a bulimia thing. She didn't find it funny.
I never knew that a small child could show me so much about life. But korbyn shows me all the time what's important in life.
I don't know why this trial was chosen for us, but I do know we will not back down. We will fight to the finish line. Finish line is 3 years 3 weeks away. Korbyn should be done with treatment just shy of his 7 th birthday. I'm thinking January of 2017 to celebrate, maybe a nice cruise or something.
Thank you, everyone for bringing the trick or treating to this brave little guy. Seeing the outpouring of love, has once again brought tears to my eyes. And words can't express the thanks I have for you taking time to bring a smile to this ninja fighter after a long day of ninja fighting chemo.
Korbyn is back to every 10 days chemo. He will be having chemo, with LP chemo as well on Halloween. The hard reality of childhood cancer is taking away normalcy from a child's life as cancer becomes the new normal. Trick or treating will not happen for korbyn this year, he will probably be too sick. It sucks. We have a few awesome friends who are reverse trick or treating to korbyn. Trying to bring smiles to a little guy fighting a big battle.
I want to say a special thank you to charity, and her amazing friends who delivered preschool supplies to us, for Korbyns preschool. The kindness is appreciated more than you know, and when he feels up to it, he loves mommy and me preschool. He loves "homework" as well.
Wow we haven't updated for quite a while.
Korbyn has been under quarantine and solitary, His counts have been horrible. He spent some time in the hospital for neutropenic fevers, and a couple weeks on iv antibiotics every 8 hours. His counts have recovered enough to discontinue the iv antibiotics.
While he was in the hospital he got to meet Batman, and friends.
this friday night chilis restaurant is holding a give back night for korbyn. mention korbyns cause, at the west valley, west jordan, orem, or centerville location, and 15% of your purchase goes to korbyn for help with his medical bills. please help us spread the word, and get people out, lets show korbyn that he doesn't fight alone.
korbyn only had 2 pushes of chemo today as his good guy counts are tanking. he will have 2 blood draws over the next couple of weeks, before we start super intense therapy options. as they anticipate he will need a transfusion before then.
he was playing with color, cornstarch, and water at clinic today. he had so much fun. and that's super easy to clean up.
