Life as I used to know it.

I used to think I had life figured out, I knew what I wanted, and I was working towards that. It's funny 8 and a half months into this leukemia fight, being the right hand man for my wonderful son, has changed me. I get really frustrated seeing others and their reaction to my mask wearing, bald headed super hero, and I get concerned seeing their reactions as well. I want to sit with all of them, and clue them in, on the realities of life, I have come to know.
Don't "feel bad" for my son, instead look at his courage, and his strength, as he stares cancer in the face, and says, "not this time". For his strength is what keeps me going.
I used to strive to give my children all of the perks of life, nice clothes, new toys. Those perks have been a distant memory as it becomes a fight to sometimes put food on the table. I am a very proud woman, and it takes a lot out of me to willingly accept the helping hands of others. I get upset when others don't allow me to help them, yet sometimes myself won't admit I need the kindness, and generosity of friends, family, and strangers.

As we embark on this holiday season, knowing there is no room in our very tight budget, I thank those of you, for adopting my children in your hearts, and thinking of them. As a mother this is one of the most painful things putting pride to the side, and admitting, if it wasn't for the kindness in the hearts of others, we wouldn't even have a tree this year.
I am in no way asking for a handout, I am simply saying thank you. And as you go about your holiday plans, with the hustle and bustle, be safe, and know in your hearts, there is someone out there, who may not say it personally, but is indeed very grateful that you were there, when it seemed no one was, and that is truly what this time of year is about.
May God bless and keep you.

Hockey game

So tonight we went to the grizzlies game, with the leukemia and lymphoma society. Awesome story, when we got there, and were finding our seats, a really nice lady, who works for the administration office, offered us upgraded front row, right behind the glass to the left of goal seats. So so sweet of her. The kids got bear claws, and hockey pucks. And really (maybe too much) enjoyed the face smashing glass action.
Fun night.

Update

Wow I am really bad at updating, korbyn is 3 weeks away from final maintenance, which will be only every 4 weeks iv chemo, and prescription chemo at home. This little guy shows me daily what bravery is. I have seen him look cancer in the eye, and stand his ground.
Right now the only real concern is the " manorexia" he is getting so skinny. I don't think the Dr appreciates my sense of humor, when she said he has chemo induced anorexia, I joked that with the barfing, I think its more a bulimia thing. She didn't find it funny.

I never knew that a small child could show me so much about life. But korbyn shows me all the time what's important in life.
I don't know why this trial was chosen for us, but I do know we will not back down. We will fight to the finish line. Finish line is 3 years 3 weeks away. Korbyn should be done with treatment just shy of his 7 th birthday. I'm thinking January of 2017 to celebrate, maybe a nice cruise or something.

Halloween

Thank you, everyone for bringing the trick or treating to this brave little guy. Seeing the outpouring of love, has once again brought tears to my eyes. And words can't express the thanks I have for you taking time to bring a smile to this ninja fighter after a long day of ninja fighting chemo.

Update

Korbyn is back to every 10 days chemo. He will be having chemo, with LP chemo as well on Halloween. The hard reality of childhood cancer is taking away normalcy from a child's life as cancer becomes the new normal. Trick or treating will not happen for korbyn this year, he will probably be too sick. It sucks. We have a few awesome friends who are reverse trick or treating to korbyn. Trying to bring smiles to a little guy fighting a big battle.

I want to say a special thank you to charity, and her amazing friends who delivered preschool supplies to us, for Korbyns preschool. The kindness is appreciated more than you know, and when he feels up to it, he loves mommy and me preschool. He loves "homework" as well.

Wow we haven't updated for quite a while.
Korbyn has been under quarantine and solitary, His counts have been horrible. He spent some time in the hospital for neutropenic fevers, and a couple weeks on iv antibiotics every 8 hours. His counts have recovered enough to discontinue the iv antibiotics.

While he was in the hospital he got to meet Batman, and friends.

august 30th

this friday night chilis restaurant is holding a give back night for korbyn. mention korbyns cause, at the west valley, west jordan, orem, or centerville location, and 15% of your purchase goes to korbyn for help with his medical bills. please help us spread the word, and get people out, lets show korbyn that he doesn't fight alone.