update, for our followers, friends, family, new friends, new family.
korbyn will be getting an ekg, a red blood transfusion, as they will be doing the peg push tomorrow. this weekend with 4 pushes of chemo (3 different types, iv, and spinal) and starting the steroid pulse, had knocked the ninja fighter down.
He stopped napping at 10 months old, and these past 4.5 months have more than made up for lost nap time. his awake hours some days mimic that of little babies.
steroids have kicked up his appetite, which is awesome, as this little guy has gone down to 24 lbs. this last 3 months. friday they ran his weight and height on the percentile ratio, for age. he is not on the chart for weight ( below 0% percentile) & in the 11% for height.
we will avoid an ng tube for now if he can atleast keep drinking to stay hydrated. and flush his kidneys accordingly. we are 3 days into our 56 days of intensified chemo regimen, and best case 109 days away from starting maintenance.

long update, but that's where we are at. we have 3 years, and 109 days best case left in this fight to the finish line. the finish line is just shy of his 7th birthday.. he is 3 now. how's that for reality check of this long hard fight.
God bless you all, and thank you for your love and prayers, as we push along.