it seems like the week has just flown by, and we are again inching closer to the 3x higher potency chemo. this little boy is such a rock star with everything going on. it's amazing, and yet so humbling at the same time. he no longer cries or whines, when he gets poked to access his port, he doesn't fight the medical mask, he has become accustomed to this as part of his life. and it's heart breaking, that children so young and innocent adapt to medical necessities that help save their lives, so easily.
it's so hard to not be able to take your child, to the places that children should allow to be children; as the invisible bad guys are way too harmful. parks, are too dangerous, with germs, and bacteria. play lands, and toy stores.
you become so protective, because the immune system of your child is not protective enough.
you long for the days of laughter, and playing, as those days of childhood are not as common as they once were.
you reach out for someone to try to understand, for someone to hear you.

I'm working on the beginnings of a project, I will deploy for suggestions in a few days.
stay tuned.

please remember orange friday for leukemia awareness. you don't need to deck your self out like a construction cone ( if you do I want a picture though) but wear something orange, to show support to the brave warriors, who have fought and won, are fighting valiantly, who have bravely fought, and now wield their swords for jesus.
god bless.